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Tuesday, September 2, 2014

PTSD

Today was my first radiation treatment. I watched the clock all morning until time to leave for my appointment. I hadn't thought I'd be nervous but I was... It's strange how my range of emotions has changed since my diagnosis. I'm usually pretty calm and easy going. I noticed this wasn't the case today. One of my children called to talk to me as she drove to work. We were having a pleasant conversation and then she cut me off in the middle of a sentence. Normally, it wouldn't have been a big deal. I would have just skipped over the incident and continued on with my conversation but this time, I said something. I mentioned to her that she had been very rude by not allowing me to finish my sentence. Of course, she apologized and asked me what I had wanted to say. At that point, I didn't want to revisit that part of our conversation, so I just clammed up. I guess I was on edge about going for treatment. There was no other logical explanation.

I arrived at the radiation treatment facility about thirty minutes early. In the waiting room, I sat and listened to others having conversations. I was surprised to smell cigarette smoke on someone in the midst of people waiting to have treatment for Cancer. I was irritated! Some people just don't get it. A thin, obviously very ill man walked into the waiting room as he coughed and hacked. I knew that chest rattle well. He reeked of cigarette smoke and the smell made me nauseous. There's another one, I thought to myself. If only they understood. They have power to better their odds of living by quitting their nicotine habit. I moved to the other side of the room. I can't stand to smell cigarette smoke any more. Since my father died of lung cancer, even the slightest smell of a cigarette brings back bad memories.

Engrossed in a magazine, I didn't hear my name when it was called. The woman beside me asked if I were Mrs. Annis. I politely smiled at her and got up to go with the waiting nurse. She led me to the dressing area and told me to remove everything from the waist up and put on the gown. When I was ready, she took me into the radiation room.

Inside the radiation room were two radiology technicians. They assisted me in getting onto the narrow table and got me situated into my personal foam mold. They had draped a sheet over the mold to facilitate repositioning me. The lights were dimmed and the machine was brought over my chest. I was pulled and pushed into the perfect position as one tech grabbed the sheet on one side of me and the other tech was opposite her. Once I was correctly aligned underneath the laser beams, several xrays were taken and then one of the techs came over and said, "okay now, your first treatment will begin. We're going to place a warm, wet towel over your chest and the radiation beams will pass through this. This is called bolus. It can be applied to the skin to alter the dose received both at depth in the tissue and on the skin surface. It is used often for post-mastectomy chest wall treatment, to increase the skin dose. You won't feel anything other than the towel's wetness and weight. You'll hear a whirring and some clicking, but other than that, you won't feel or see anything."

The radiology techs walked out of the room but assured me they could see and hear me. If I needed anything at all, I was to call out to them. The machine began to whirr and move around my body. I was told to remain completely still at all times. My arms were hurting as they were stretched above my head for the treatment. I made a mental note to myself to work on some stretching exercises to help loosen up that skin and tissue in the days ahead. Fifteen minutes later, I was done and the techs were helping me up off the table.

The nurse was waiting for me at the door and took me to the scale. As I stepped up, she said, "now don't be going on a diet or anything for the next several weeks. We don't want you losing any weight. Your body is going to get weaker in the days ahead and you will need all your strength." Wow. That's the first time I've ever had a doctor's office tell me NOT to worry about losing weight!

We went into an exam room and the doctor came in to talk with me. She asked how I was feeling and explained that every Monday I would meet with both she and the nurse. They would check my general health but also closely monitor my skin. She explained that they would also watch my right rib, lung, and my liver because the radiation could cause some definite changes. One of the main things they were concerned about was damage to my right lung. She explained that they would also be targeting lymph nodes in my neck and shoulder area and may even go up into my throat. This could cause some changes in my vocal abilities. I sat there and listened intently, trying to remember everything she'd said. As we wrapped up our conversation, she handed me a prescription for Radiaplex, a special type of gel that would need to be applied 3 times a day to the radiated area.

On my way home, I was emotionally numb. It had been a lot to process although I hadn't experienced any physical pain. My cell phone was buzzing with messages coming in and there were several missed calls and Facebook messages. While I'm thankful to have so many people who love and care about me, I just didn't feel like rehashing the events of the day over and over again. I turned it on silent and slipped it back into my purse.

I looked at the clock when I got home. It was 12:30 p.m. and I realized I hadn't had lunch yet. As I was preparing my lunch, the house phone rang and just a few minutes later, my cell phone was ringing. Oh my goodness! "Can't people just leave me alone for a little while?" I thought. I am not used to having sensory overload... I realized at the moment that I was suffering from PTSD, (Post Traumatic Stress Disorder), a very common occurrence after Breast Cancer. Medical dictionaries describe it as an anxiety disorder that can be brought on by a traumatic event. Symptoms include:
  • nightmares or flashbacks about the cancer experience (yes)
  • continuously focusing on the cancer experience (yes)
  • avoiding people, places, and events that remind you of the experience (yes)
  • trouble sleeping (yes)
  • extreme irritableness (yes)
  • intense feelings of fear (yes)
  • being overly excitable (yes)
  • feeling helpless or hopeless (yes)
  • shame or guilty feelings (yes)
  • bouts of crying (yes)
  • feeling emotionally numb (yes)
  • sadness or depression (yes)
  • loss of appetite
  • trouble maintaining personal relationships (yes)
  • self-destructive behavior (alcohol or drug abuse, for example)
  • memory problems (yes)
  • concentration problems (yes)
  • being startled or frightened easily (yes)
  • getting no joy from activities you used to enjoy (yes)
  • hallucinations
Now it made a little more sense. I wasn't going to be so hard on myself any longer. I had a legitimate excuse. Cancer had totally changed my life and now it was altering my personality. I don't like feeling this way and I'm going to ask God to help me overcome these feelings. I'll also talk to my doctor about them at my next appointment. But for right now, for self preservation, I hope my friends and family will understand that I just don't want to go over and over details. I'm working on processing things in my own head. I love all of my family and friends dearly but I just can't handle the extra mental anguish right now. I just need some time and a little bit of space. I'll be okay, it's just going to take a little time.

©bonnie annis all rights reserved

A new attitude

Last night, I tossed and turned all night long. No matter what I tried, I just couldn't get comfortable. Although my incisions have healed fairly well on the outside, the muscles and tissues on the inside are still in the process of healing. Turning my body in certain ways causes extreme pain and tenderness. It's not easy to learn to sleep on your back when you've always been a side sleeper!

After a fitful night's sleep, I woke up around 4:00 a.m. I reached over and felt to see if Phil was still in bed and was surprised to find him there. It wasn't quite time for him to get up and go to work. He moved a little and rolled over going back to sleep. Although I was wide awake, I just lay there in the darkness thinking.

I must have dozed off shortly afterwards because when I woke up and looked at the clock again, it was 5:30 a.m. I got up and walked into the living room expecting to see Phil sitting there reading his Bible as he did every morning, but he'd already left for work. I picked up my Bible from the table beside my recliner and went back into the bedroom. Early morning devotions have always been routine for me and this morning was no different. I read several passages of Scripture, had my devotion and spent time in prayer. When I was done, I got up and got dressed.

I proceeded to make the bed and opened the blinds to allow the early morning light to filter into the bedroom. I love watching the sun come up! When I opened the blinds, a stream of light fell onto our bill basket. Phil always tries to keep it out of my sight because he knows I worry when I see the ever growing stack of bills. I picked up the basket and started going through the bills looking at due dates. Several of them needed immediate attention. I noticed the car insurance bill was past due. Quickly, I shot off a text message to Phil asking him to contact the insurance company and make arrangements to pay it. His response, "don't worry...be happy." Phil's always been one not to stress over things he can't control. I took the basket of bills and laid my hands over them asking God to please provide a way for us to pay them. Although Phil is constantly telling me not to worry about them, I find it difficult to leave them alone.

By this time of the morning, I was getting hungry so I went into the kitchen to fix breakfast. Sitting down at the table, I enjoyed my bowl of cottage cheese with pineapple while reviewing instructions from the radiologist on my first treatment. There were detailed instructions on what to do to keep my skin moisturized and helpful tips on things to do in order to minimize radiation burns. A long list of side effects was also listed but I tried not to pay attention to those.

As I sat there reading over medical information, it was as if a light bulb went off in my head....I needed to change my attitude! Instead of focusing on the negative things, I needed to focus on the positive things. Yes, I'd had a fitful night's sleep and was exhausted, but I did have a nice, cozy bed to sleep in and a comfortable, safe home. Yes, we had a huge stack of medical bills that we couldn't pay right now but that meant I was being able to receive treatment for my cancer. Yes, Phil was working 10 hour days, 6 days a week, but that meant he had a job and God was providing for our needs. When I began to see things in a more positive light, all of the negative things seemed to slip away. Phil's text message was still on my phone so I looked at it once again- "don't worry....be happy!"

I felt God speaking to my heart and saying, "my child, this is what I've wanted you to understand all along. There's no need to worry! I have everything under control. Be still and rest in me." With tear filled eyes, I picked up my cell phone intending to read Phil's text one more time, instead, my eyes focused on the Scripture verse for the day, Psalm 46:10, "Be still and know that I am God." It was no coincidence that God allowed me to see that verse at the exact moment I did. He was reiterating what He'd spoken to my heart a few minutes earlier. Sitting in my kitchen, I pondered all God had given me this morning. Indeed I needed a new attitude. I was determined to eliminate the negative and accentuate the positive. From this point forward, I'm going to choose not to worry. I'm going to take Phil's sage advice and just be happy. I'm alive and fighting to continue living. God is good. My husband is hardworking, loving, and kind. It's a beautiful new day and everything's going to be all right, I'm sure of it!

©bonnie annis all rights reserved
 

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