What I want you to know:
You probably didn't even know I was missing did you? But for the past month, I have been AWOL. I haven't been myself. I've been under the influence of different cancer medications and I've been an emotional wreck. I've felt like I was totally out of control...unable to think clearly, unable to control my emotions, and basically....I've felt like a total basket case!
When I started not remembering things, it got scary! I'd turn on the stove and put the pan on the wrong eye or put something in the dryer that was supposed to go in the freezer! I couldn't focus on anything and was crying all the time. I got so depressed at one point that I told my husband I couldn't do it any more. I decided right then and there that I was going to have to come off of these medications!
My oncologist wasn't overly sympathetic toward me. I guess doctors get calloused after hearing complaint after complaint but I put my foot down. He told me that I had to be on medication or the cancer would come back. I told him I understood that but the past 2 medications were just not a proper fit for me. He told me there was only one other drug that he could offer and that drug was the newest of the aromatase inhibitors. I really wanted to tell him I'd prefer to take my chances without any medication, but I didn't dare because my husband was sitting right next to me. I did ask for permission to abstain from taking the medication until we return from our trip to Texas and the doctor was okay with that. He actually thought it was a good idea because if I experienced any weird side effects, he wanted me to be somewhere in the state of Georgia.
Since coming off the medication, I have felt WONDERFUL!!! I've felt perfectly normal...just like I did before I found out I had cancer. I've been able to do the things I enjoy the most and be totally cognizant while doing them. Unless you've been under the influence of some type of drug, you probably don't understand how much that means. It's really scary to be unable to think clearly when you're used to having a sound mind. It's amazing that one tiny pill can totally change my emotional state and my demeanor.
I'm thankful that I will be off of all cancer medications until the end of February. I am going to totally enjoy my month of freedom. I am very hesitant about starting the new medications especially after the side effects I experienced during the last 2 rounds. Hopefully any side effects will be minimal but if I experience mind altering/mood changing side effects, you can bet your bottom dollar that I will be on the phone to my oncologist in the blink of an eye.
In the meantime, I'm going to do a lot of research on the medications he's suggested. I'm also going to put all my other medications into a drug interaction checker and cross check for potential problems. I am a firm believer that we have to be proactive concerning our health. While I would prefer to be free of any and all medications, I am thankful for the ones that help my body function properly like my thyroid medication and my blood pressure medication.
What I'm thinking:
I feel awesome! I am really enjoying being off of the antihormone therapy and wonder if I can just skip cancer meds all together. I have a big faith and I know God can protect me from any cancer recurrences but would Phil understand? Would he feel better knowing that I was on medicine? If the new meds start making me feel weird, I am going to have to contact the doctor. I am not willing to go through the craziness that I went through before. I don't like feeling out of control. I don't like not being able to remember what I was doing. I don't want to take a chance on forgetting to turn off the stove and burning the house down! I'm keeping my fingers crossed that this new medicine will be okay and I won't have any major side effects. I can't even imagine having to take cancer meds for the next 10 years!!!! What kind of quality of life will I have??? I don't like this one bit.
Thursday, February 5, 2015
Wednesday, February 4, 2015
Insurance changes and Cancer meds
President Obama's affordable health care act has adversely effected the health insurance plans of many companies. A number of employers have been overhauling the health benefits they offer employees, citing rising costs. There
are two themes to what they are doing. In trying to control their own
spending, employers often are shifting health costs to employees. So the
average annual deductible for an individual has nearly doubled in the past seven years. But
employers aren't just making workers pay more. They're trying to make
them think more about health-related expenses and behavior. Some companies have decided to stop covering working spouses if they have access to coverage at their own jobs. The health law does not require employers to cover spouses, but surveys show that only a minority of companies have implemented a "spousal exclusion." However,
employers increasingly offer incentives to get spouses off their plans.
They may charge workers extra if a covered spouse has access to other
insurance, or they may pay bonuses when spouses are not on the company
policy. The health law requires employers who offer coverage to
employees to also offer coverage to dependent children, or pay a
penalty.
The affordable care act mandates that prescription drugs are one of 10 essential health benefits that insurance plans must offer — among maternity and newborn care, preventative care, hospitalization and mental health — the ACA makes drug coverage a core part of health insurance, and it eliminates insurers’ ability to tack on a prescription drug benefit plan to a health care plan at an additional cost. Patient copays vary regarding the type of plan, type of medication, and the prescription drug company's formulary. The ACA requires insurance plans to cover at least one drug in every category and class in the U.S. Pharmacopeia, the official list of approved medicines. Patients and their doctors can request and gain access to clinically appropriate drugs that aren’t covered. Plans maintain their own preferred-drug lists, or formularies, and the cost for the same drug can vary significantly between plans, which is especially important to note for consumers with chronic conditions such as cancer.
Yesterday, I received a call from my prescription drug company. My oncologist had sent in two prescriptions for me. One of the medications was not listed on the company's formulary. The voice on the other end of the phone advised me that the cost of this medication might be higher than others in the same class of aromatase inhibitors. She suggested I contact the insurance company and inquire about the cost of this medication, just hearing her say those words concerned me. We'd already noticed many changes in our health insurance plan since the first of the year and most of those changes were negative changes.
I called the insurance company to ask about the monthly charge for Aromasin and almost fell off of my chair when the clerk told me the fee would be $275 for a 30 day supply. While that might not seem expensive to some people, it was definitely expensive to us especially since we only have one monthly income. After discussing it with my husband, we decided it would be a good idea to call the doctor's office and see if there was an alternative medication. Thankfully, when I called and spoke with my doctor's nurse, she gave me some peace of mind. She assured me they would do everything they could to find a medication that would fit into our budget as well as combat the cancer.
My heart goes out to those who need expensive medications and are unable to afford them. Some prescription manufacturers offer programs for those on low incomes but many do not. Many doctors offer prescription samples to patients who are unable to purchase their medications but there are also those who do not. It's a sticky situation for those of us who need medications on a daily basis. I am so thankful that my husband's company provides the opportunity for us to participate in their health insurance program and although they require annual documentation to insure me, we have yet to be denied benefits.
There are many different opinions on the Obama Affordable Care Act. Some people are very opposed to it and others are very thankful for it. I have my own personal opinions on it and I won't share them here. Hopefully, most of us realize how blessed we are to live in a country where we can easily obtain necessary medications for illnesses. There are so many countries where this is not the case. Wouldn't it be nice if none of us ever needed any medications? But with the world we live in today, that would never be possible. Good health should never be taken for granted.
The affordable care act mandates that prescription drugs are one of 10 essential health benefits that insurance plans must offer — among maternity and newborn care, preventative care, hospitalization and mental health — the ACA makes drug coverage a core part of health insurance, and it eliminates insurers’ ability to tack on a prescription drug benefit plan to a health care plan at an additional cost. Patient copays vary regarding the type of plan, type of medication, and the prescription drug company's formulary. The ACA requires insurance plans to cover at least one drug in every category and class in the U.S. Pharmacopeia, the official list of approved medicines. Patients and their doctors can request and gain access to clinically appropriate drugs that aren’t covered. Plans maintain their own preferred-drug lists, or formularies, and the cost for the same drug can vary significantly between plans, which is especially important to note for consumers with chronic conditions such as cancer.
Yesterday, I received a call from my prescription drug company. My oncologist had sent in two prescriptions for me. One of the medications was not listed on the company's formulary. The voice on the other end of the phone advised me that the cost of this medication might be higher than others in the same class of aromatase inhibitors. She suggested I contact the insurance company and inquire about the cost of this medication, just hearing her say those words concerned me. We'd already noticed many changes in our health insurance plan since the first of the year and most of those changes were negative changes.
I called the insurance company to ask about the monthly charge for Aromasin and almost fell off of my chair when the clerk told me the fee would be $275 for a 30 day supply. While that might not seem expensive to some people, it was definitely expensive to us especially since we only have one monthly income. After discussing it with my husband, we decided it would be a good idea to call the doctor's office and see if there was an alternative medication. Thankfully, when I called and spoke with my doctor's nurse, she gave me some peace of mind. She assured me they would do everything they could to find a medication that would fit into our budget as well as combat the cancer.
My heart goes out to those who need expensive medications and are unable to afford them. Some prescription manufacturers offer programs for those on low incomes but many do not. Many doctors offer prescription samples to patients who are unable to purchase their medications but there are also those who do not. It's a sticky situation for those of us who need medications on a daily basis. I am so thankful that my husband's company provides the opportunity for us to participate in their health insurance program and although they require annual documentation to insure me, we have yet to be denied benefits.
There are many different opinions on the Obama Affordable Care Act. Some people are very opposed to it and others are very thankful for it. I have my own personal opinions on it and I won't share them here. Hopefully, most of us realize how blessed we are to live in a country where we can easily obtain necessary medications for illnesses. There are so many countries where this is not the case. Wouldn't it be nice if none of us ever needed any medications? But with the world we live in today, that would never be possible. Good health should never be taken for granted.
Monday, February 2, 2015
Remembering what He has done



Three times in my life, I've looked death squarely in the eyes. In 1970, I was extremely ill. For over a year, doctors tried to find out what was wrong with me. Finally one doctor determined that the problem was gallstones and he prepared to do surgery. Little did he know that my gallbladder would burst on the operating table and gangrene would start to flood through my body. I was only 13. I almost died. It took a long time to recuperate but God watched over me and kept me safe.
In 1991, I was involved in a serious motor vehicle accident. I was hit head on by a 2 1/2 ton truck. My car was totaled. My leg was mangled. The doctors told my family they may have to amputate but God chose to have the best orthopedic surgeon in Northeast Georgia on staff at the hospital that day and he was able to save my leg. Years of painful therapy and recovery took place. I spent a year in a wheel chair and another year on crutches. I had to learn to walk again, but I did it! With determination and hard work, I did it. I could have died the day of the accdient, but God protected me.
In 2014, I was diagnosed with stage 2B breast cancer. Once again, God was with me. Instead of the mass being undetected and killing me, God allowed me to find it one day in the shower. He sent me to the best breast surgeon in Fayetteville and she was able to remove the tumor. Cancer had spread to my lymph nodes and she removed 6 of those too. But instead of Cancer killing me, I'm still here.
I've faced many trials and adversities in my life. These are just a few of the more severe ones. Instead of focusing on the pain and trauma from these past illnesses and injuries, I choose to focus on the fact that I was never left alone. God was always with me. He orchestrated events according to His will for my life and He used those to make me the person I am today. He allowed me to go through all of those painful events. He allowed me to be physically injured.
You may be wondering why God would allow me to be hurt. The only answer I can give you is
Have you ever been to a winery? Have you walked among the fruits of the vineyard? Recently, on a summer vacation, my husband and I stopped to visit one of North Georgia's wineries. We walked with the vinter through the vineyard as he explained which grapes were best for each type of wine. As we walked down the rows, I noticed there were several places on one plant where grafts were evident. As I asked the vinter about the grafts, he explained that by grafting these two types of grapes together, they could obtain a much sweeter wine. I was amazed to hear all about the wine making process and I couldn't help but think about my favorite verse once again.
In grafting, the tissues of one plant are inserted into the tissues of another so that the two sets of vascular tissues are joined together. The "vine" contains the desired genes to be duplicated in the branch! But we can't get connected without the wounds on both the vine and the branch! When God allows pain and suffering to enter our life, we are invited to join with Him. He sees we are strong enough to enter into a closer, covenantal relationship with Him. And He asks us during these times, "Do you still love Me? Do you still trust Me?"
During the times in my life where I've experienced extreme physical pain, I've had to remind myself that God allowed it to happen. I never blamed God for my injuries, but I knew He had specifically chosen them to mold me and shape me into the person I am today. Even as I continue to battle breast cancer, I find myself thanking Him for choosing this trial for me. But just because I thank Him, doesn't mean it is an easy trial. My suffering allows me to understand and partake of His sufferings which were magnanimous compared to my measily aches and pains.
As my body is wounded and I am grafted into His body, I find myself becoming stronger and stronger in my faith. I can honestly answer His questions with ease...Do you love me? Yes, Lord, with all my heart. Do you still trust Me? Yes, Father. I trust you. Even when I can't see Your hand, I trust Your heart.
I'll probably never understand why God has allowed me to experience so much physical pain in my life but I am grateful that He's seen fit to walk beside me every step of the way. He's never left me or forsaken me. He's used my suffering to draw me closer to Him, so how can I complain about that?
There are people who've been through much pain in their lives and they've chosen to become bitter instead of looking for a reason behind the suffering. My faith in God has sustained me and given me hope that tomorrow will be a better day. He's shown me, this year, that He uses pain and suffering to teach valuable lessons. We just have to be willing students who are ready to learn.
There is a reason for suffering and pain. It isn't ever wasted. If you are suffering today, know that God is with you. He's promised never to leave you or forsake you. He may be using your trial to teach you something valuable about Him. Whatever the case, trust that He uses all things for our good, even the hard things.
©bonnie annis all rights reserved
Thursday, January 29, 2015
Thankful Thursday
Tuesday I had my six month check up with my Oncologist. We sat and talked for a while about how I've been feeling before he broached the subject of medication. I was really hoping he'd just forget about it, but that was just wishful thinking.
Dr. "F" explained that I had to be on medication because my cancer was fed by Estrogen and Progesterone. He said, "if we can't keep those hormones in check, the cancer will return and grow somewhere else in your body so it's important that we stay on top of it." I'd already been on Arimidex and Tamoxifen, so I wondered what he was going to recommend now.
We talked about the differences between the way Tamoxifen and aromatase inhibitors work. Dr. "F" explained that Tamoxifen doesn't actually block the production of Estrogen in your body, it only binds to it and slows it down. Arimidex and other aromatase inhibitors block the production of Estrogen. Since Arimidex gave me such dreadful joint and bone pain, he didn't want me on that drug any longer. Tamoxifen was a nightmare for me, giving me crazy hot flashes, night sweats, mood swings, and a lot of other unacceptable symptoms.
I'm glad Dr. "F" was sympathetic toward me. He said, "I really want you to have a good quality of life." Gee thanks, doc! I want a good quality of life too. So what's the plan? He's going to try me on another aromatase inhibitor called Aromasin and he's going to add a drug called Effexor along with it. Effexor, although known as an antidepressant, is one of the only known drugs that eases and almost eliminates the dreaded hot flashes and night sweats. I'm going to be on a very low dose of it at first and then he'll adjust it as we see how it affects my body.
The good news is, I get to wait to start taking the new meds until I return from my trip to Texas! I'm so happy about that. Having one month of feeling semi normal is a gift I can't even begin to explain to you. I do worry a little about the time I'll be off meds however; I can't help but wonder if those nasty cancer cells are playing hide and seek somewhere in my body. But instead of focusing on that, I'm going to just be thankful I have one month without any weird side effects!
It's amazing how just being off of the medication for a few days has changed me physically. I actually FEEL GOOD. I haven't felt good since early March of last year before I discovered the mass in my breast. It feels good to feel good. I've missed it! I feel so good, that I've started doing things that I love again.
Health is something most people take for granted but when you don't have good health, your world turns upside down. I am grateful for medications that will help prolong my life, but I sure wish I never had to take any of them. I'm going to enjoy every single day of my month's worth of freedom and I'm going to hope for very minimal side effects from the new medication I'll start near the end of February. Let's hope this new one will be a good fit. Dr. "F" told me, at my office visit, that this was our last option but I'll cross that bridge when I come to it. Today is a good day and I am very thankful to be me and actually feel like myself for a change.
©bonnie annis all rights reserved
Dr. "F" explained that I had to be on medication because my cancer was fed by Estrogen and Progesterone. He said, "if we can't keep those hormones in check, the cancer will return and grow somewhere else in your body so it's important that we stay on top of it." I'd already been on Arimidex and Tamoxifen, so I wondered what he was going to recommend now.
We talked about the differences between the way Tamoxifen and aromatase inhibitors work. Dr. "F" explained that Tamoxifen doesn't actually block the production of Estrogen in your body, it only binds to it and slows it down. Arimidex and other aromatase inhibitors block the production of Estrogen. Since Arimidex gave me such dreadful joint and bone pain, he didn't want me on that drug any longer. Tamoxifen was a nightmare for me, giving me crazy hot flashes, night sweats, mood swings, and a lot of other unacceptable symptoms.
I'm glad Dr. "F" was sympathetic toward me. He said, "I really want you to have a good quality of life." Gee thanks, doc! I want a good quality of life too. So what's the plan? He's going to try me on another aromatase inhibitor called Aromasin and he's going to add a drug called Effexor along with it. Effexor, although known as an antidepressant, is one of the only known drugs that eases and almost eliminates the dreaded hot flashes and night sweats. I'm going to be on a very low dose of it at first and then he'll adjust it as we see how it affects my body.
The good news is, I get to wait to start taking the new meds until I return from my trip to Texas! I'm so happy about that. Having one month of feeling semi normal is a gift I can't even begin to explain to you. I do worry a little about the time I'll be off meds however; I can't help but wonder if those nasty cancer cells are playing hide and seek somewhere in my body. But instead of focusing on that, I'm going to just be thankful I have one month without any weird side effects!
It's amazing how just being off of the medication for a few days has changed me physically. I actually FEEL GOOD. I haven't felt good since early March of last year before I discovered the mass in my breast. It feels good to feel good. I've missed it! I feel so good, that I've started doing things that I love again.
Health is something most people take for granted but when you don't have good health, your world turns upside down. I am grateful for medications that will help prolong my life, but I sure wish I never had to take any of them. I'm going to enjoy every single day of my month's worth of freedom and I'm going to hope for very minimal side effects from the new medication I'll start near the end of February. Let's hope this new one will be a good fit. Dr. "F" told me, at my office visit, that this was our last option but I'll cross that bridge when I come to it. Today is a good day and I am very thankful to be me and actually feel like myself for a change.
©bonnie annis all rights reserved
Wednesday, January 28, 2015
Double D's and Double A's....I ain't talking batteries here!
It's taken 6 months for me to get to a point of even wanting to wear my prostheses. They've sat on my dresser in their cute little pink boxes just waiting for the chance to go out. Every day I've glanced over at them but never dared to pick them up and put them on. They were just too doggone heavy.
During my first fitting, about two weeks after my surgery, I told the lady at the breast cancer survivor's product/supply store that the boobs were too big. She insisted that I needed those D's even though I told her I'd never been that big in all my life. She was an older woman and seemed very determined to have her way, so I acquiesced. I know which battles to fight and which ones to leave alone. I left the store that day with 2 really big prostheses nestled comfortably in pink hat boxes. I also left with 4 matronly brassieres. When I say matronly, think Aunt Bea on Andy Griffith...yeah, THOSE kind of bras. You know the kind, those sturdy support bras...the kind that Ellie Mae Clampett (from The Beverly Hillbillies) used as a double barreled slingshot in one of the episodes. So needless to say, I wasn't thrilled with my purchases.
Today, I made a trip back to the prostheses store. I had called earlier in the day to talk with someone about my plight of having 2 huge D's and my need to swap them out for something smaller and more suitable. The woman on the phone was very understanding and encouraging. She told me that even though it'd been 6 months since my last fitting, she'd be more than happy to refit me and make the necessary exchanges. Now mind you, the only reason I was even considering wearing prostheses at this point in my journey was because my breast surgeon told me I HAD TO wear them. She reminded me that my body knew there was something missing from the front of my chest and if I didn't supply the necessary weight to compensate for my loss, my body would begin to react negatively to the situation. She said the first thing that would happen would be that my shoulders would start to round forward in a protective manner. Then she said my spine would start to change and I'd begin to have major problems with my stature. I was perfectly fine being flat chested and bra-less. But I figured the doctor knew better than I did what I should do at this point.
The fitter at the women's store took me back into a dressing room and asked me to remove my blouse. As I did, I noticed all of the certifications posted on the wall. I didn't know you had to be trained to be a prosthetic fitter, but apparently you do. The woman noticed that I was not wearing my bra and prostheses and she asked why. I explained that I just couldn't stand to have the weight of them against me. I told her the bra was very uncomfortable rubbing against my incisions. I held out the bra for her to hold and she was amazed at the weight of my fake boobs (or FOOBS as a lot of breast cancer survivors call them.)
After removing the massive D's from the mastectomy bra, she placed them gently into their round pink zippered boxes and smiled. She said, "I'll be back in a few minutes," as she left me standing there half nude. While she was out of the dressing room, I looked at myself in the mirror. My scars had healed quite nicely although they still looked hideous to me. The ugly purple had faded into a deep rose color but they were still reminders of the most horrible year of my life.
Within a few minutes, my fitter came back into the room. She had some new forms in her hands and told me that these were a size B. I told her they should be much better than the D's and she asked me to try them on. We stuffed them into the mastectomy bra and she helped me try it on. The weight of these FOOBS was much lighter, but they were so pointy that I couldn't help but laugh. She asked me what was wrong and I told her they stuck out way too much! Turning quickly on her heel, she spun around and headed back out the door.
Once again, the fitter entered the room. She held two small flesh colored gel implant looking prostheses in her hands. "How about these?" I held out my hands and she slipped the silicone ladies into my palms. I hefted the weight and was pleasantly surprised to find that they were very lightweight. I also liked the fact that they were gel coated on the side that would touch my body. The fitter said these were a new kind of prosthetic that had just come in with a cooling gel feature. She explained that the cooling gel was a plus for women who also were going through anti-hormone therapy. The coolness of the gel helped to counter the effects of the hot flashes that often accompanied therapies like Arimidex, Tamoxifen, Aromasin, and other anti-hormone therapies.
She handed me a new bra that reminded me of the training bra I received as a gift from my mother at the tender young age of 8. It was seamless and unobtrusive. I started to laugh and she asked once again why I was laughing. She must have thought I was some sort of nut to be laughing all through my fitting! I told her the story of how jealous I was when both my sister and I began approaching puberty. I went on to tell her about my mother's gifts to us. A "real" bra for my sister, and a "training" bra for me. She laughed along with me as she slipped the new bra over my shoulders.
Oh my goodness! I can't tell you how nice that bra felt! It was so smooth and so lightweight I barely felt I had on a bra at all! The weight of the prostheses was so minimal, I could hardly believe I was wearing anything. As I looked in the mirror, I was pleasantly surprised. I looked sideways and smiled at the little mounds of silicone jutting out from my chest. "These will do just fine," I said. She asked if I was sure...she said, "you know these are a double A?" I said, "they're perfect." She told me I could have any size I wanted and explained they had a full range of breast forms in sizes DD through AA. "We just want you to be happy," she said, with a look of concern on her face. I told her I was very happy. Finally I had a bra and prostheses that I felt comfortable wearing.
I left the store with my new bra and FOOBS on although my husband couldn't tell. I had on my winter coat and I didn't mention a thing to him. When we got home, I took off my coat. He still didn't notice, so I stood right in front of him and said, "look...new boobs!" He laughed and said, "where???" I pointed to my little mounds and he smiled. It was good...it was all good. No more DD's for me, I'm a AA girl all the way. I could have chosen bigger boobs but the pain wasn't worth it to me. I'd rather be barely there and comfortable than hunkered over with huge melons on my chest.
Bette Midler, in one of the songs she sang in the movie, Beaches, called a brassiere an over the shoulder boulder holder. I guess if you had DD's that would be a perfect description. It's funny how much attention people pay to women's chests anyway, isn't it? For an entertaining little video about boobs and brasseries, watch Bette Midler preform her song Otto Titsling. After all, boobs make good subject matter for not only blog posts but musicals too.
©bonnie annis all rights reserved
During my first fitting, about two weeks after my surgery, I told the lady at the breast cancer survivor's product/supply store that the boobs were too big. She insisted that I needed those D's even though I told her I'd never been that big in all my life. She was an older woman and seemed very determined to have her way, so I acquiesced. I know which battles to fight and which ones to leave alone. I left the store that day with 2 really big prostheses nestled comfortably in pink hat boxes. I also left with 4 matronly brassieres. When I say matronly, think Aunt Bea on Andy Griffith...yeah, THOSE kind of bras. You know the kind, those sturdy support bras...the kind that Ellie Mae Clampett (from The Beverly Hillbillies) used as a double barreled slingshot in one of the episodes. So needless to say, I wasn't thrilled with my purchases.
Today, I made a trip back to the prostheses store. I had called earlier in the day to talk with someone about my plight of having 2 huge D's and my need to swap them out for something smaller and more suitable. The woman on the phone was very understanding and encouraging. She told me that even though it'd been 6 months since my last fitting, she'd be more than happy to refit me and make the necessary exchanges. Now mind you, the only reason I was even considering wearing prostheses at this point in my journey was because my breast surgeon told me I HAD TO wear them. She reminded me that my body knew there was something missing from the front of my chest and if I didn't supply the necessary weight to compensate for my loss, my body would begin to react negatively to the situation. She said the first thing that would happen would be that my shoulders would start to round forward in a protective manner. Then she said my spine would start to change and I'd begin to have major problems with my stature. I was perfectly fine being flat chested and bra-less. But I figured the doctor knew better than I did what I should do at this point.
The fitter at the women's store took me back into a dressing room and asked me to remove my blouse. As I did, I noticed all of the certifications posted on the wall. I didn't know you had to be trained to be a prosthetic fitter, but apparently you do. The woman noticed that I was not wearing my bra and prostheses and she asked why. I explained that I just couldn't stand to have the weight of them against me. I told her the bra was very uncomfortable rubbing against my incisions. I held out the bra for her to hold and she was amazed at the weight of my fake boobs (or FOOBS as a lot of breast cancer survivors call them.)
After removing the massive D's from the mastectomy bra, she placed them gently into their round pink zippered boxes and smiled. She said, "I'll be back in a few minutes," as she left me standing there half nude. While she was out of the dressing room, I looked at myself in the mirror. My scars had healed quite nicely although they still looked hideous to me. The ugly purple had faded into a deep rose color but they were still reminders of the most horrible year of my life.
Within a few minutes, my fitter came back into the room. She had some new forms in her hands and told me that these were a size B. I told her they should be much better than the D's and she asked me to try them on. We stuffed them into the mastectomy bra and she helped me try it on. The weight of these FOOBS was much lighter, but they were so pointy that I couldn't help but laugh. She asked me what was wrong and I told her they stuck out way too much! Turning quickly on her heel, she spun around and headed back out the door.
Once again, the fitter entered the room. She held two small flesh colored gel implant looking prostheses in her hands. "How about these?" I held out my hands and she slipped the silicone ladies into my palms. I hefted the weight and was pleasantly surprised to find that they were very lightweight. I also liked the fact that they were gel coated on the side that would touch my body. The fitter said these were a new kind of prosthetic that had just come in with a cooling gel feature. She explained that the cooling gel was a plus for women who also were going through anti-hormone therapy. The coolness of the gel helped to counter the effects of the hot flashes that often accompanied therapies like Arimidex, Tamoxifen, Aromasin, and other anti-hormone therapies.
She handed me a new bra that reminded me of the training bra I received as a gift from my mother at the tender young age of 8. It was seamless and unobtrusive. I started to laugh and she asked once again why I was laughing. She must have thought I was some sort of nut to be laughing all through my fitting! I told her the story of how jealous I was when both my sister and I began approaching puberty. I went on to tell her about my mother's gifts to us. A "real" bra for my sister, and a "training" bra for me. She laughed along with me as she slipped the new bra over my shoulders.
Oh my goodness! I can't tell you how nice that bra felt! It was so smooth and so lightweight I barely felt I had on a bra at all! The weight of the prostheses was so minimal, I could hardly believe I was wearing anything. As I looked in the mirror, I was pleasantly surprised. I looked sideways and smiled at the little mounds of silicone jutting out from my chest. "These will do just fine," I said. She asked if I was sure...she said, "you know these are a double A?" I said, "they're perfect." She told me I could have any size I wanted and explained they had a full range of breast forms in sizes DD through AA. "We just want you to be happy," she said, with a look of concern on her face. I told her I was very happy. Finally I had a bra and prostheses that I felt comfortable wearing.
I left the store with my new bra and FOOBS on although my husband couldn't tell. I had on my winter coat and I didn't mention a thing to him. When we got home, I took off my coat. He still didn't notice, so I stood right in front of him and said, "look...new boobs!" He laughed and said, "where???" I pointed to my little mounds and he smiled. It was good...it was all good. No more DD's for me, I'm a AA girl all the way. I could have chosen bigger boobs but the pain wasn't worth it to me. I'd rather be barely there and comfortable than hunkered over with huge melons on my chest.
Bette Midler, in one of the songs she sang in the movie, Beaches, called a brassiere an over the shoulder boulder holder. I guess if you had DD's that would be a perfect description. It's funny how much attention people pay to women's chests anyway, isn't it? For an entertaining little video about boobs and brasseries, watch Bette Midler preform her song Otto Titsling. After all, boobs make good subject matter for not only blog posts but musicals too.
©bonnie annis all rights reserved
Labels:
bra,
brassiere,
fitter,
fitting,
Mastectomy,
prostheses,
prosthetic
Monday, January 26, 2015
Discovering me
Spending time in solitude provides precious time in which to think. For days and days I've been pondering the many things I've experienced in my life and how they've made me into the person I am today. I've been through an awful lot. As I think back over my past, I find comfort. My life has been filled with both good and bad. Some of the things I chose and some of them were chosen for me, but in each instance, I've grown and changed. I've finally begun to discover who I really am. It's taken 57 years for me to get a glimpse of myself and begin to understand who I really am, but I am thankful. Some people spend their entire lives trying to figure out who they are and never quite make it. After experiencing many life lessons, I have realized I am resilient and brave but only through the power of Christ.
You're braver than you think video clip
There's a wonderful quote that A.A. Milne used in his classic book, "Winnie the Pooh," that I love. Christopher Robin and Winnie the Pooh are sitting on a branch in the evening when Christopher Robin begins to talk to Pooh and he tells him, "always remember, you're braver than you believe, stronger than you seem, & smarter than you think." I love that quote. Christopher Robin and Pooh are dear friends and have always been there for each other. A. A. Milne captured the essence of growing up in his book, "Winnie the Pooh," with such sweetness and such truth. That little quotation has helped me get through this year of cancer. I've had to constantly remind myself that I was braver than I believed, that I was stronger than I seemed and that I was smarter than I thought. Sometimes I did a pretty good job of convincing myself and other times, not so much. My family and friends have been wonderful supporters and they've picked up the slack when I had a hard time believing in myself. When my belief in what I could do wasn't strong enough, they cheered me on with their encouragement and helped me through some very difficult times. But there's another quotation that has meant even more to me than A. A. Milne's quotation. "I can do all things through Christ who gives me strength." Philippians 4:13 (The New International Version of the Holy Bible). For most of my life, this verse has been my rock. No matter how challenging a situation, no matter how difficult it was, I knew I would be able to not only get through it, but rise above it with Christ's strength.
Bravery was never a quality I felt I possessed. To be ready to face danger or pain without reservation, that is what it means to be brave. I've always thought myself to be quite fearful and even though I had faith in God, sometimes, I failed to trust Him completely. Every year God gives me a word to focus on and this year, the word has been TRUST. I've always struggled in this area of my life, whether with people, relationships, or with God. I never had a brave trust in Him. I'm sure He knew my limitations of trust were partly based on my constant need to control things in my life. But as I learned to release my grip on control, He began to show me I could trust Him completely in ALL things. I didn't have to be afraid any longer.
It's hard for me to admit that I had a problem trusting, but I did. Let me give you a silly example of my inability to trust. My husband and I travel to Texas every other year to visit one of my daughters. We usually take turns driving because it's such a long trip. When I drive, he'll fall asleep at some point. He will rest so well that he begins to snore loudly. But when he's driving, I never can fall asleep, even though I'm exhausted and want to close my eyes so very much. I just can't do it! I've always been afraid that if I wasn't helping him watch the road, we might have an accident or he might not see the turn off he needed to make, so I stayed awake. I never realized until a few years ago that even my need to stay awake was a control issue. God had to teach me that lesson.
When you have cancer or any other major illness in your life, there's little you can control. I've had to learn to release control of any and everything in my life to my loving, Heavenly Father. Although, I know Him well and know His character through constant study and reading of His Word, it wasn't easy. He had to pry my fingers off of my own life and teach me that I was never really in control anyway, even though I thought I was!
Not only was I fearful of giving my complete trust, I also worried a lot, and when I say a lot, I mean A LOT. For some reason, I thought that my worrying would make things better. One day, God taught me a valuable lesson about worrying. It was almost as if I could hear His voice speaking to my heart as I was in the midst of worrying about an issue with one of my children. What I heard Him speak to me was this, "Bonnie, don't you trust me? I am trustworthy. When you worry, you are telling me that you don't believe I can take care of the things that concern you. This breaks my heart. I do not want you to bear the burden of worry. It is not yours to bear, but Mine. You will never experience complete freedom until you learn to let go and trust me completely." That did it. I never knew that God never intended for me to carry the burden of worry so I let it go. Worrying never changed the outcome of anything anyway, so why waste that energy doing it?
Cancer has taught me to trust God completely. It has taught me that I am braver than I thought especially when I had no option other than to be brave. I've found that I have more courage than I ever dreamed I possessed and I am proud of that. Cancer has shown me that I am tenacious and resilient. It's helped me discover many things about myself that I never realized were true. Most of all, it's helped me realize that I really can do ALL things through Christ who gives me strength. Without His strength, I would be a shattered and broken woman without hope. I'm so thankful that I have Jesus to cling to especially when life gives me an unexpected challenge.
©bonnie annis all rights reserved
When you have cancer or any other major illness in your life, there's little you can control. I've had to learn to release control of any and everything in my life to my loving, Heavenly Father. Although, I know Him well and know His character through constant study and reading of His Word, it wasn't easy. He had to pry my fingers off of my own life and teach me that I was never really in control anyway, even though I thought I was!
Not only was I fearful of giving my complete trust, I also worried a lot, and when I say a lot, I mean A LOT. For some reason, I thought that my worrying would make things better. One day, God taught me a valuable lesson about worrying. It was almost as if I could hear His voice speaking to my heart as I was in the midst of worrying about an issue with one of my children. What I heard Him speak to me was this, "Bonnie, don't you trust me? I am trustworthy. When you worry, you are telling me that you don't believe I can take care of the things that concern you. This breaks my heart. I do not want you to bear the burden of worry. It is not yours to bear, but Mine. You will never experience complete freedom until you learn to let go and trust me completely." That did it. I never knew that God never intended for me to carry the burden of worry so I let it go. Worrying never changed the outcome of anything anyway, so why waste that energy doing it?
Cancer has taught me to trust God completely. It has taught me that I am braver than I thought especially when I had no option other than to be brave. I've found that I have more courage than I ever dreamed I possessed and I am proud of that. Cancer has shown me that I am tenacious and resilient. It's helped me discover many things about myself that I never realized were true. Most of all, it's helped me realize that I really can do ALL things through Christ who gives me strength. Without His strength, I would be a shattered and broken woman without hope. I'm so thankful that I have Jesus to cling to especially when life gives me an unexpected challenge.
©bonnie annis all rights reserved
"Many people
wrongly exclude fear from the definition of courage, believing that
courage is the absence of fear. Every time such people feel afraid, they
assume that they aren't courageous. The reality, though, is that
courage is fearful. When we are acting courageously, we are, most
typically, very afraid. But we don't allow the fear we're carrying to
stop us. Instead, we press on. This is the signature feature of courage:
to carry on despite being fearful. Fear, thus, is an essential element
in the definition of courage. You can't be courageous unless you are
afraid." ~Bill Treasurer
"The world breaks everyone, and afterward, some are strong in the broken places." Ernest Hemingway
"The world breaks everyone, and afterward, some are strong in the broken places." Ernest Hemingway
Tamoxifen
(Nolvadex) has been used for over 40 years to treat breast cancers that
are hormone-receptor positive. Hormone receptor-positive breast cancers
need the hormone estrogen (and/or progesterone) to grow. - See more
at:
http://ww5.komen.org/BreastCancer/Tamoxifen.html#sthash.ksVzeH6w.dpuf
Tamoxifen
(Nolvadex) has been used for over 40 years to treat breast cancers that
are hormone-receptor positive. Hormone receptor-positive breast cancers
need the hormone estrogen (and/or progesterone) to grow. - See more
at:
http://ww5.komen.org/BreastCancer/Tamoxifen.html#sthash.ksVzeH6w.dpuf
Sunday, January 25, 2015
What I learned from my 30 day Facebook Fast
It’s been about 30 days since I began my Facebook fast. It
was an interesting and very revealing self-imposed challenge. I thought I’d
share with you some of the things I learned from my time away:
For some time, I’ve been feeling the need to separate myself
from my time on social media. God kept whispering in my ear, “you’re spending
more time on Facebook than you are with Me” and He was right! I was. I admit
it. I was a total Facebook addict. Almost every day since we moved away from
our old home, Facebook became my first love. I had no friends here and since my
surgery, I’d felt so isolated and alone. Spending time on Facebook was my way
of staying connected. Every morning, I’d get up, get showered and dressed, fix
my breakfast and walk into my office. I’d sit down at my computer and pour over
the news feed catching up on all of my “friends” lives. Looking at their
photos, I felt connected and a part of what was going on with them. Many of my
friends were distant relatives or old high school buddies and Facebook was a
way to stay in touch.
The first week of my challenge, I found myself having to
fight the urge to pull up Facebook on my computer or cell phone. I wanted so
badly to know what was going on in the lives of my friends and family. I had a
huge FOMO (fear of missing out). It took a lot of willpower to resist the urge
to cheat, but I did it. I began to focus spending more time reading my Bible.
I’d always read it and had a devotional every day, but I began to dig in a
little deeper and spend a lot more time doing Greek and Hebrew word studies.
The second week of my challenge was still difficult. While I
was feeling totally socially deprived, as I had in the first week of the
challenge, I continually felt drawn to the computer with a desire to check in. It
was like a magnet…whenever I went into my office, it was as if my computer was
pulling me over to it. I fought against it and found other things to keep me
busy making it through the second week. My time with the Lord was becoming
longer and longer. I stopped watching the clock and just spent as much time as
I needed with Him each day. As I began to draw closer to Him, He began to draw
closer to me. I was embarrassed at how much time I’d been wasting on Facebook
each day and had to confess it and ask for forgiveness.
The third week, I barely thought about Facebook at all. I
had found lots of empty free time in my schedule now that I wasn’t focusing on
checking my Facebook page several times a day. I began completing craft
projects I’d had on hold and I began some new ones. I even decided to learn
some new jewelry making techniques and have fallen in love with Kumihimo
(Japanese braiding).
My fourth week away, I never thought about Facebook at all!
I was perfectly content with all the free time I had and enjoyed filling it up
with things I love. Occasionally, my husband would share something he’d read on
Facebook but I didn’t really absorb it. I just shook my head and said, “oh
really?”
So what did I learn from my challenge to leave Facebook for
30 days?
I learned that Facebook is a time thief, if you let it, it will steal precious minutes from your day.
I was dumbfounded
by the amount of time I found in my days after leaving Facebook. I was also
amazed at how quickly time slips away while you sit in front of the computer
going through the newsfeed. One minute it would be 9:00 a.m. and then the next
time I’d check the clock it was noon! Time just seemed to slip away so effortlessly.
Facebook
communication is a lot of white noise.
When I dropped Facebook, I noticed that the volume of communication
in my life dropped significantly. But even so, I didn’t really feel a drop in
the level of significant and meaningful communication. What I seemed to lose
was mostly a lot static noise.
Generally speaking, communicating via Facebook is a shallow
experience. You read streams of brief messages from a variety of people, but
the messages don’t contain much depth. Most are trivial and mundane. Some are
clever or witty. Very little of the information you digest on Facebook is
memorable and life-changing. Facebook can still give you a feeling of being
connected but the long-term benefits are negligible.
Facebook essentially gives you the emotional sense that
you’re doing something worthwhile (i.e. connecting with people), but when you
step back and look at your actions and results from a more objective
perspective, it becomes clear that you’re really just spinning your wheels and
doing nothing.
Consequently, when I left Facebook, I let go of a lot of
trivial communication, but I didn't have the sense that anything truly valuable
had been lost. In fact, when I got back on Facebook after my thirty day
absence, I didn’t have a single desire to scroll back through the news feed to
catch up on what I’d missed!
Impulse
sharing comes with a price, think before you post.
In the weeks after quitting Facebook, I still felt the urge
to share certain things with my online “friends”. I’d have a clever thought and
feel, I should post this. Or I’d take a really cool photo and think, I
ought to share this. In the past I’d have shared those tidbits out of habit. Then
I’d check back in later and read through a few dozen comments people left. And
there would be a little emotional reward in having that sense of connection.
But without the option to impulse-share during the past 30
days, I allowed those feelings to come and go without acting on them. I noticed
that there was a consequence to sharing in real-time. I wasn’t being very present
in the moment. While things were happening around me, I was off thinking about
my online friends and what I might wish to share with them.
When I stopped acting on the desire to impulse-share, I
become more present in what I was doing at the moment. Instead of being
distracted by thoughts of connecting with people at a distance, I did a better
job of connecting with the people right in front of me. I felt more immersed in
my experiences. It was a subtle change at first, but it felt good!
Even after 30 days, the desire to impulse-share is still
there, but it’s growing fainter, replaced by a growing desire to “be in the here and now,”
fully present in what’s going on in front of me. I still like sharing, but it’s
better to do so thoughtfully instead of impulsively.
Friends lose
their individuality and become part of a collective.
Facebook compacts so much communication into a single
stream, and this can have a depersonalizing effect. As I continued to use Facebook, I gradually began thinking of my
online friends as a network, a stream, or a big blob, as opposed to valuing each person
as a unique individual.
When I’d post a status update, who was the intended
recipient? Which friend was I updating? In truth I wasn’t sharing with anyone
in particular. I was simply sharing with the collective. If I posted something on a friend’s wall, I wasn’t just
communicating with that friend. I was communicating with their friends too.
One thing that surprised me was just how few of my Facebook
friends I actually missed when I left the service. It was difficult to think of
my old Facebook friends as individuals. They were all just part of the
collective whole. When I unplugged from the collective, it wasn’t like I’d lost
any individual friends. Dropping Facebook wasn’t at all like disconnecting from
hundreds of individual friends. I didn’t miss anyone in particular because my
Facebook experience was like connecting with a collective. I noticed the absence
of the collective when I left, but I didn’t miss it per se.
The exception is that if I knew specific Facebook friends
from real life, meaning that we’d met in person and had at least one good
conversation together, then I could still see them as individuals. But I don’t
need Facebook to stay in touch with those people anyway, so I didn’t feel like
I was losing any of these connections by dropping Facebook.
Facebook
creates a false and unsatisfying sense of socializing.
I’m somewhere between an introvert and an extrovert. As a
child I was very extroverted. I enjoyed being with others and around others. As
I aged, however, I gradually became more introverted. After my breast cancer
surgery, I became extremely introverted. I avoided face to face social contact
as much as possible because my self esteem was at the lowest point ever.
It’s said that you’re an introvert if you recharge your
batteries while being alone, and you’re an extrovert if you recharge in the
company of others. Being active on Facebook had the effect of filling my social
bucket. But it was essentially a false fill, like drinking salt water instead
of fresh water. Instead of providing a real sense of connection that satisfies,
it made me think I was out there being social, but I’d still be “hungry”
afterwards. Facebook activity could never recharge my batteries in the way that
face to face interaction could. But since I avoided face to face connections
now, it helped me stay in touch.
Facebook is computer interaction, not human interaction.
The reality of using Facebook is that you’re just typing and viewing insignificant bits of information on a digital device. You can call it social networking, but it’s not really a social experience if you’re actually alone sitting at a computer. Real socialization is face to face. A virtual ***hug*** isn’t a real hug. A smiley face icon isn’t a real smile. All you’re doing is pushing buttons. It's not reality.
A friend isn’t necessarily a “friend”.
I can be friendly with people from all walks of life, but when it comes to which people are most compatible as my long-term friends, the Facebook pool isn’t a good fit for the kinds of lasting friendships I really wish to cultivate.
Most of my Facebook “friends” wouldn’t have been very compatible as in-person friends. We wouldn’t have had enough in common to develop a particularly deep friendship, and the interactions would have been too unbalanced. So it seems odd to refer to them as friends in the same way I’d refer to my in-person friends. It would be much better to refer to them as acquaintances.
Facebook is ruled by addicts.
This is probably obvious, but the Facebook “friends” that you’ll interact with most frequently will tend to be those who are the most addicted. They post more status updates and comments because they spend a lot of time glued to Facebook. So you end up giving the most attention to those who are the greatest addicts.
Facebook is lazy socialization.
Social networking makes it easy to become socially lazy. With a few clicks, you can delude yourself into thinking you have an active social life. But is that the real story? Are you enjoying some intelligent face time with these friends? Or are you merely exchanging witty banter? Do you deeply value these friendships? Are you having the social experiences you desire? Or are you just wasting time clicking and typing and telling yourself you’re being social? What else could you be doing instead of social networking?
It’s a good idea to pause and take a look at your social results. Has social networking transformed your life for the better? Has it helped bring empowering relationships, valuable contacts, and intelligent mentors into your life? Or does it leave you drifting in a sea of social drifters?
I found that spending more time on Facebook didn’t produce much value for me socially. I did make some interesting contacts now and then, but it wasn’t worth the time spent.
It was definitely worth it to step away for 30 days!
If you have any doubts about your own Facebook usage, I highly recommend you try a 30-day Facebook fast. It’s easy to do this because Facebook lets you (temporarily or permanently) deactivate your account without deleting your data. So if you decide you want to go back to using it later, you can always log back in again, and everything can be restored with a few clicks, including your wall, photos, etc. As for the how-to, all you do is login to your Facebook account, and click Account -> Account Settings. Then at the bottom of that page, click “deactivate.” Follow the instructions from there. This won’t delete your data, but it will take your profile offline. You’ll become invisible on the service. To restore it later, just login again and click a similar link to bring it back.
If you really want to stay in touch with certain people from Facebook who don’t already have an alternate means of contacting you, you can send them a private message before you deactivate your account to let them know how to reach you during your hiatus.
I’m so thankful I did this challenge. In my case it was obvious within a few days that the benefits I got from using it weren’t worth the effort, but there were other subtleties I didn’t notice until weeks later.
The 30 day fast helped me realize that my time is valuable and precious to me. It also helped me realize I needed to re-prioritize things in my life and instead of spending hours and hours a day on the internet, I needed to shift my focus to living in the here and now. I needed to concentrate more on my spiritual life and less on the social media network.
When I signed back in, for the first time in 30 days, the post I placed on my wall was a tad bit facetious. I said, “I’m back! Did I miss anything?” I knew when I posted it that I hadn’t really missed anything important. Sure I may have missed seeing some cute photos or quippy posts but other than that, I’m sure there was nothing major that I’d missed.
Now that I’ve refocused, I’ll check my Facebook page once or maybe twice a day but I surely won’t sit in front of my computer for hours on end scrolling through the news feed. I can’t believe I ever did that in the first place, but like I said before, right after surgery I became extremely introverted. I had no social interaction at all other than with my husband and my children so Facebook did fill a void for me.
It’s funny, but somehow I feel as if I’ve taken my life back. I feel empowered that I can choose to keep things in my life private instead of sharing every little detail on Facebook. Now, when I’m out shooting, I don’t take a photo and think immediately, “oooh, I have to post this!” And when I travel, I don’t have to tell all of my Facebook friends where I’m going and what I’m doing. In the past, I would have shared the information in a sort of braggadocios way…”hey guys, look where I am! Look what I’m doing! Aren’t you jealous???” (Well, I never really used those words but in essence, that’s what my posts were saying.
It amazes me that so many people spend so much time on Facebook every day. What did they do before Mark Zuckerberg had the idea to create Facebook back in 2004? How did Facebook become such a phenomenon? Will people ever tire of it? Will something new come along to take its place? Why do we feel such a need to snoop into other people’s lives? Why do we feel a need to keep up with the Joneses? Why do we feel let down if no one comments on our posts?
There are so many Facebook addicts out there, are you one of them? Would you admit it to anyone other than yourself? How does it make you feel to know you give Facebook so much power over your life? Could you break away from it for a period of thirty days and have the will power not to check it even once? I challenge you to consider taking a break. You may not want to do a full thirty days, but how about a week? Could you handle 7 days without Facebook? Try it and be amazed at what you find out about yourself during your sabbatical. I did it and I’m so glad I did.
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